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A humorous, intimate, compassionate insight into the experience of illness and the process of recovery
RESOURCES AND ARTICLES
The following are trusted sources to help you learn about lymphoma and radioimmunotherapy.
ABOUT LYMPHOMA AND ITS TYPES
Listen to my webcasts with Drs. Klein, Turturro and Smith
ENCOURAGING
New York Times Article, April 8, 2008: Non-Hodgkin’s Lymphoma on the Rise, Along With Prospects for A Cure: April 8, 2008
FIND A DOCTOR
Choosing a Blood Cancer Specialist or Treatment Center (Leukemia and Lymphoma Society)
YOU AND YOUR DOCTOR:
DIAGNOSIS AND PATHOLOGY
The Nuts and Bolts of Lymphoma Pathology, an excellent slide show presented at the Lymphoma Research Foundation Educational Forum, November 2009.
TREATMENT
The National Comprehensive Cancer Network (NCCN), an alliance of 21 of the world’s leading cancer centers, annually updates treatment recommendations which are developed by experts in the fields of various cancers. These guidelines provide a source to which physicians can turn for guidance in making treatment decisions. It’s technical but worth the read. You'll have to register (it's free), sign in and then click to find lymphoma treatment recommendations.
RADIOIMMUNOTHERAPY
Three experts discuss RIT on video: This is from 2003 but it’s a great explanation of how RIT works with great visuals.
HealthTalk's Lymphoma Education Workshop: Transcript of lymphoma expert Dr. John Leonard discussing RIT, January 7, 2008
Lymphoma Research Foundation Newsletter, Spring 2007: Lymphoma expert Dr. Oliver Press discuss RIT. This is a .pdf file - see pages 4 and 5.
UNDERUTILIZATION OF RIT
Journal of the National Cancer Institute: Users Fear That Lymphoma Drugs Will Disappear
New York Times: Market Forces Cited in Lymphoma Drugs' Disuse
RSNA News: Radioimmunotherapy Faces Obstacles As Lymphoma Treatment
MedCity News: One Radiation Oncologist's Goal For Total Disruption
SUPPORT
Chat with a trained staff member of the Leukemia and Lymphoma Society
BECOMING YOUR OWN BEST ADVOCATE
From the National Coalition of Cancer Survivorship, a booklet on how to help you build self-advocacy tools
ADDITIONAL READING:
A great companion to my book, Hope Begins In The Dark is an inspiring collection of stories by lymphoma survivors. They were compiled by my good friend Jamie Reno who is a lymphoma survivor (thanks to RIT), a long time journalist for Newsweek and a talented musician. See Jamie's story under Success Stories.
What matters most is how you see yourself.
